CHARGE Syndrome Canada promotes the awareness and recognition of persons with CHARGE Syndrome in Canada, and provides information to these individuals, their families, professionals and the Canadian public.
Mandate
A national organization for Canada, which endeavours to:
· increase public awareness of CHARGE syndrome
· act as a resource for individuals with CHARGE syndrome, their families and related professionals
· support the philosophy of using individualized approaches and techniques for persons with CHARGE syndrome
· work with both government and non-government agencies and organizations to foster networking and information exchange
· support related research