chargesyndrome

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*This website is not meant to replace your doctors advice or care. If you suspect your child has CHARGE syndrome, please contact a geneticist who is familiar with CHARGE syndrome

Parents as Partners in Education

CHARGE Syndrome, also known as CHARGE association, is thought to occur around the third week of fetal development. (deKort 2003) Tissue in various structures of the body do not complete in development. Major organs such as the heart and kidneys are affected, and these early critical medical issues keep children in hospital for extended periods. Children undergo extensive medical proceedures, such as the repair for choanal atresia. But as well, sensory systems are affected, leaving children with reduced vision, hearing, and vestibular abilities. Cranial nerve involvement means these children often have problems in sucking, swallowing, usually have reflux and future problems in feeding remain.

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